Good morning/afternoon everyone!

Type your chat here

Excited

Off the chain

Optimistic

Thankfully, healthy!

Encouraged

Getting lots of great responses in! Remember to post to “all panelists and attendees”

Good, but a bit anxious about the future, as people decide they don’t need masks anymore but the virus is still circulating

feeling ok

Hopeful

Hi All, Happy Friday! Feeling Great!

Very grateful for my transplant and for this Webinar. Thank you!!!!! Linda

feeling great! positive! I am in my 269th day of quarantine! had a heart transplant August 8th, 2019! Now, I have Stage 3 kidney disease....

getting ready to celebrate 13 years with my kidney on June 21st

Uh, I thought this was a “life for the transplant recipient in a COVID world” webinar??

Congrats on 13 years Alex

Feeling secure is so important right now

thanks

Thanks all for sharing how you’re feeling! Sorry we had a little hiccup with the chat function at the beginning.

Hi Richard, we believe all transplant recipients will benefit from this webinar

Hi Leah and Colette. We are all kidney recipients but this information will pertain to all transplant recipients

Feeling awesome! So grateful for my kidney. I feel as if I have a second chance of a new life. Love the Allowsure testing. Last test was. 0.12. My surgery was Jan 8 2020, I. continue to use a mask at all times. Covid really scares me and I hope to continue to receive updated info. My husband gave his kidney to another individual so that I could get a new kidney. I am vey concerned

Welcome Michael!

covid has been tough. but I agree with you Monica as well that finding new ways to be socially together but apart. thanks for normalizing it

I totally get what Della’s saying about the anxieties of managing post-transplant problems and adding COVID into the equation. Same here!

Della, I so agree with you! I need my peeps! I haven’t seen my grandchildren, other than FaceTime, since July!

I have tried to be positive and grateful, although I really miss going to social events. I pray everyday that God will protect me from Covid and all infections. I am 19 months post transplant.

We're not post Covid. Just because people don't acknowledge it doesn't mean it has disappeared all of a sudden

My daughter is getting married in Oct. the state now allows 300 people and dancing at a wedding. That's great, but I'm very worried. I can't miss the wedding, but am trying to figure out how to navigate it.

I get it Monica! I get so angry when I see people not wearing masks or wearing them correctly!

Agree we are not post Covid at all.

I am terrified to go out in public and I’m only 15 years old

my stepmom has passed away and I’m in Atlanta right now. dealing with figuring out how to celebrate her life. my family and I have to consider things that we generally shouldn’t have to worry about for a funeral.

I have a question about people coming into my home for routine things like housekeeping, exterminator and handy man

Hang in there Stephanie, you are not alone.

Hang in there, Stephanie! The idea of going back to school must be so scary. (I’m nervous about my son returning to college and bring viruses home to me)

Thank you!!

Monica, How has this pandemic affected your spiritual and church life?

I AGREE WITH MONICA ABOUT OPENING UP BECAUSE THE HOSPITALS ARE READY

Does anyone know of a kidney transplant recipient that has tested positive or has the antibodies?

socializing

I’m an introvert, so….:)

I miss traveling too

all of the above! especially, seeing grandchildren!

My nephologist has had transplant patients that has recovered from covid.

Carol Sampson, I will not allow Covid take over my life. I will continue to keep my self protected so that I will remain safe. My husband and I traveled on many cruises and now we are too scared.

I have been seeing my family and friends but staying outside, taking walks etc. I miss travel.

I miss travel, too.

Monica. so true. I miss that too

my husband owns 2 days spas that opened this week. I am so jealous that I cannot go yet!

How do you become an advocate for kidney disease? I would love to make a difference for others in that manner.

Glenda - im an introvert also, so I'm fine staying in the house..

Thanks, Antonina. I’m so much more productive and creative.

I have been following weight watce

Sorry, I have been cooking low calorie meals, lost weight and will continue after Covid

How aware are transplant patients of CareDx statistics that for solid organ transplant patients in the US who catch Covid-19, mortality is running over 20%? How safe is it to really go out in the world?

Congratulations, Linda Miller.

Thanks Glenda! Can't eat out so decided to get with it and get healthier! It is hard tho!

my girlfriends (3), come and visit outside...socially distanced, with masks...when someone needs the restroom, we all go home! no one goes inside each others’ homes!

Treatment

Agreed!

I agree, Alexis. Asymptomatic carriers is a huge concern.

i believe this will be our new normal

Do you confront people for their non compliant behavior or just put up with it? I hate confrontation .

I doubt that we’ll return to normal because we are dependent on our colleagues to be vigilant in terms of hygiene and distancing.

If I do not confront them. I remove myself from the situation.

We need “immunosuppressed” scarves to remind people of our risk.

I just had a televisit with my doctor.

Great idea! I would buy one!

I love the scarves idea. Can we get them in different colors?

Alan - that is an excellent idea.. i wud get one.

I like that idea

I do not confront people…My husband does, all the time. It makes me nervous that someone is going to get really angry with him.

I, only, do what my transplant team tells me to do....no matter what the info is out there at the time!

The scarves would help for any of us that are compromised. This would be the time that folks would hopefully know what it means now.

I hope we continue in home labs.

Me too! CareDX had a great webinar 6/2 about that (it’s available on demand).

I was never offered in home labs, have just been going to lab for draws and praying I don't get sick!

Della - I like that idea about having somebody to talk to. My family doesn't understand my risk because I don't "look or act sick"..

I agree

I have only went to get labs once during this. I wud like home labs.

taking to my care team

I’ve been reluctant to have home labs because we have not allowed anyone into our home and I don’t want them to bring anything into our home from other visits.

Agreed, but going out feels like a bigger risk.

I've had my transplant for 4+ years

I struggle with depression, and I have been able to see my counselor each week, by Telehealth.so grateful!

I’d love to hear what transplant nephrologists think about recipients going out to restaurants for outdoor dining. I want to go but I’m nervous about no masks!

COVID-19 is new and adapting. Everyone is learning, including the professionals. Ask your care team or other advocates.

Thank you!

Exactly, Della! We are not alone. Thank you to everyone involved for putting this webinar together. It's helpful and inspiring to hear all of you share information about COVID. I'll be celebrating my 30th transplant anniversary this September, but I'm still being extremely cautious about moving toward a new normal.

thank you!

it was great

You can register for Managing Anxiety as a Transplant Patient in a COVID-19 World at https://caredx.zoom.us/webinar/register/8815918333738/WN_b8j19fTyTQytrZnVnI_S7Q

thank you. Stay well and safe everyone

Thanks everyone!