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Hindsight is 2020 – Kick 2021 Off Right! Tips and tools for health and wellness post-transplant - Speaker view
Sasha King
39:59
Dance along!
CareDx - Alexandra Flaxman
40:55
Welcome everyone! Thank you all for joining!
Peggy Mangum
41:59
I have vol no video
Merle Zuel
42:04
Looking forward to the information today
Lorrinda Gray-Davis
42:14
Looking forward to hearing from you all!!
CareDx- Rana Mukaled
42:15
Welcome Everyone!
CareDx - Alexandra Flaxman
42:20
Hopeful
Mark Bauman
42:26
Pretty OK
Hugh McCracken
42:33
Excercised
Koren Axelrod
42:33
excited!
Diane Kantor
42:36
very exciting and hopeful for a new year
Doris Lew
42:40
glad to be here. hopeful.
David Wing
42:40
Feeling good.
Elizabeth Gagliardi
42:41
glad to have another webinar
Daniel Trecroci
42:42
Happy New Year everybody! … New year...new hopes
William Laun
42:42
Thanks for making this possible. I’m hopeful and thankful.
Melissa Jones
42:45
Hello Everyone! I'm feeling great!
Victor Blanco
42:51
Good Afternoon, 2nd Covid-19 Vaccine in the books, grateful to be part of today's conversations. so much love!!
Diane Ellis
42:54
Interested in hearing what you have to say. Thanks for offering this today.
Carolyn DeCoursey
43:06
My anniversary of healthy kidney is January 25
CareDx - Alexandra Flaxman
43:12
Congrats Victor! That's so exciting!
Kim Burdakin
43:13
Happy Sun is shining ☀️
Shaunda Morgan
43:22
I'm doing great can't wait to learn a few things.
CareDx - Alexandra Flaxman
43:25
Happy early anniversary Carolyn!
CareDx - Alexandra Flaxman
44:17
For more info about RemoTraC: http://caredx.com/remotrac
Daniel Trecroci
45:03
Happy anniversary Carolyn
CareDx - Alexandra Flaxman
45:28
That's great, Sam!
Shaunda Morgan
45:59
Happy Anniversary Carolyn! I hope you're doing great. I'm over years out.
Shaunda Morgan
46:29
over 34 yrs out
Valen Keefer
46:50
Hi friends! I’m so excited for this webinar and so glad you’re all here!! :)
CareDx- Rana Mukaled
47:22
Congrats on 34 years Shaunda!
Diane Ellis
47:24
You likely got several of us here, Valen! Thanks!
John Tuohy
47:52
shaundra - you’ve had a transplant for 34 years?
Victor Blanco
48:11
Thank you!
CareDx - Alexandra Flaxman
48:19
That's amazing Shaunda!
Shaunda Morgan
48:20
John, yes
Victor Blanco
48:36
7 years post-transplant.
CareDx - Alexandra Flaxman
49:19
That's wonderful Victor!
CareDx - Alexandra Flaxman
50:08
Please feel free to share any questions you have in the chat. We will have a Q&A session with Dr. Agrawal, Valen and Brandon at the end
Hugh McCracken
50:23
Just walk/ran 5 miles. Nearly 2 years post transplant.
CareDx - Alexandra Flaxman
50:42
Wow! Good for you, Hugh.
Bob Flynn
50:51
Tacrolimus gives me tremors, and makes me feel weak
John Tuohy
51:05
Shaundra - congrats! that’s really great - gives me hope
CareDx- Rana Mukaled
54:52
So glad the AlloCare app is helping you Sam. The app is available to all, free, in the Apple App Store “AlloCare”
CareDx - Alexandra Flaxman
55:25
Please enter any questions you have for our panel
Elizabeth Gagliardi
56:49
when will allocate app be for android?
Hugh McCracken
56:50
Can one print out the data from the Allocare application, and does it replace the journal I fill in every day?
Lorrinda Gray-Davis
57:50
I am liver transplant recipient and just starting my kidney journey I am in stage 3B.
CareDx - Alexandra Flaxman
58:56
Thank you so much Valen for joining us and sharing your story
Victor Blanco
01:00:03
Thank you, Valen.
Kristen Patton
01:00:07
Thank you, Valen!
CareDx - Alexandra Flaxman
01:01:16
Yay, Bob! :)
CareDx- Rana Mukaled
01:01:17
If you have questions for our panelists, please feel free to type in here or in the Q&A
CareDx- Rana Mukaled
01:01:30
We have a Q&A session at the end
Hugh McCracken
01:01:53
Thanks to CareDx for creating this group. It is a missing link.
CareDx - Alexandra Flaxman
01:02:17
Thank you, Brandon! So happy to have you and Bob here with us
Brianna Tammaro
01:02:38
What an amazing story, Brandon! So happy for you and Bob :)
Kristen Patton
01:03:00
Thank you Brandon. Go Bob!
Victor Blanco
01:04:51
amazing journey, Brandon!
William Laun
01:05:11
is the vaccine safe for us?
Daniel Trecroci
01:05:21
Valen and Brandon … Can you share how your mental health (stress/anxiety levels) has been affected by COVID...and what you do to manage it?
Hugh McCracken
01:05:38
John's Hopkins Hospital is seeking transplant aptients to track after the vaccine
Hugh McCracken
01:08:40
Is CareDX doing transplant tracking or a study they are facilitating for a Nephrologist.
Dee & Kirk McConnell
01:09:40
Yes, Gratitude writing so helpful in many ways!
CareDx - Alexandra Flaxman
01:09:41
That's awesome, Amy
Sam Dey - Heart transplanted, 2015 .
01:10:48
💯 agree, @Valen! every minute out of the hospital is a blessing. I was in the hospital for 7 months...but I came out with life!
Sam Dey - Heart transplanted, 2015 .
01:10:58
HWG- Health & Wellness Goals
Sam Dey - Heart transplanted, 2015 .
01:11:04
goal: to track my results from tests & labs & monitor closely & take corrective action. celebrate milestones! do more advocacy & pay it forward to the organ transplantation & donation communities.
Sam Dey - Heart transplanted, 2015 .
01:11:12
COVID-19 is scary & a pain in the ___ ! however, it's within our control to look after ourselves & protect the gifts of life we've been blessed with. #maskup & #staysafe
Sam Dey - Heart transplanted, 2015 .
01:11:21
wow @Brandon! your mom is a true #donorhero🙏
Sam Dey - Heart transplanted, 2015 .
01:11:31
you're blessed, @Valen 🙏 Congrats on your Transplants
Sam Dey - Heart transplanted, 2015 .
01:11:44
hi @Lorrinda!
Sam Dey - Heart transplanted, 2015 .
01:11:54
Indeed, @Allocare. we're still waiting for the Android version. 🍎 gets too much importance😉
Lorrinda Gray-Davis
01:12:25
Hi Sam!!
Sam Dey - Heart transplanted, 2015 .
01:13:10
AlloCare is a very useful app! I've been using it. we Transplant recipients know how important the word "Compliance" is to us.
CareDx- Rana Mukaled
01:13:12
Excited that Android for AlloCare is coming in the Spring 2021
CareDx - Alexandra Flaxman
01:13:13
Milton, that is an incredible journey. Congrats!
Merle Zuel
01:13:13
Mental Heath Matters. The stress of the pandemic can trigger or aggravate underlying mental health issues.
Sam Dey - Heart transplanted, 2015 .
01:13:35
in April, it'll be 6 years post heart TX for me. #blessed & #forevergrateful to my ♻️ #donorhero for the #giftoflife ✅🙏
CareDx - Alexandra Flaxman
01:13:38
Great point, Merle. Nice to see you on here.
Sam Dey - Heart transplanted, 2015 .
01:13:44
congrats @Victor
Lorrinda Gray-Davis
01:13:48
I move at least 10 minutes every day...
Hugh McCracken
01:14:27
Pickleball is great too, and can be less stressfull if you are older.
CareDx - Alexandra Flaxman
01:14:30
Love your enthusiasm and participating in all our webinars, Sam.
Sam Dey - Heart transplanted, 2015 .
01:14:30
I've been using RemoTrac since April 2020!! great service - don't have to leave home for lab draws!
Diane Ellis
01:14:37
I get up at 4:45 every morning and exercise to videos on YouTube. Also walk every night outside as well.
Lorrinda Gray-Davis
01:14:38
@Merle I agree
Sam Dey - Heart transplanted, 2015 .
01:14:49
good rule to follow, @Lorrinda👍
CareDx- Rana Mukaled
01:14:50
@Sam Dey, always a pleasure to have you and other TRIO members and leaders on the webinars
Hugh McCracken
01:15:29
Great Diane!
Sam Dey - Heart transplanted, 2015 .
01:15:30
pleasure is mine @Rana/CareDx
Jerry and Chiat
01:15:37
Same to you Sam
Lorrinda Gray-Davis
01:15:38
@Hugh Love pickleball
Kristen Patton
01:15:39
virtual workouts with my local heart transplant workout group. great for physical and mental health during covid!
John Tuohy
01:15:49
keep an eye on blood sugar, especially after holidays and lockdown
Mark Bauman
01:16:02
Less than 7 months after my kidney transplant (which was June of 2019), first 1 then the other hip went VERY "south" and have had them both replaced. Tons of PT and OT. Almost able to walk on my own. Exercise is just getting around with walkers and dragging myself up my staircase!!
Kristen Patton
01:17:10
yay pilates!
Diane Ellis
01:17:20
Wow, Mark! I know you've been working hard! Keep up the good work! You'll get there!
Sam Dey - Heart transplanted, 2015 .
01:17:31
best of luck to you @Mark...keep at it
Sam Dey - Heart transplanted, 2015 .
01:17:53
great @Kristen!
Dee & Kirk McConnell
01:18:05
This May will be five years out with heart and kidney transplant. Forever grateful! Thanks and always praying for donor and donor's family. Truly a gift of love!
CareDx - Alexandra Flaxman
01:18:08
Keep up the great work, Mark. One day at a time. :)
Hugh McCracken
01:18:16
one of my issues is High Blood pressure. I try to meditate every morning to start my day.
Mark Bauman
01:18:21
Thanks- I am doing the best that I can. Between my daughter's kidney and 2 titanium/plastic hip joints, I feel bionic!!
Roland Castruita
01:18:44
thank you, great information and will use ALLOCARE
Sam Dey - Heart transplanted, 2015 .
01:19:19
congrats @Shaunda👍 Inspirational
CareDx - Alexandra Flaxman
01:19:32
@Roland Happy to hear that!
Shaunda Morgan
01:19:43
Thanks Sam
Kim Burdakin
01:20:41
I’m attending exerclasses on Zoom. Love connecting with people outside my home
Sasha King
01:20:43
I once invited my husband to join me for a barre class- he thought it was a “bar class” where you lift heavy bar weights and was very surprised to see a ballet barre when we showed up (this was back when we could go to live classes!)
Sam Dey - Heart transplanted, 2015 .
01:20:50
Kidney? @Shaunda?
Lorrinda Gray-Davis
01:20:52
@Valen and @Brandon so inspirational. WE need to see people like you as it helps us all!
Sam Dey - Heart transplanted, 2015 .
01:22:15
happy new year to all! May 2021 be MUCH better for all of us. ✊🙏
Shaunda Morgan
01:22:31
Sam, yes. My brother donated and I never was on dialysis
CareDx - Alexandra Flaxman
01:22:56
That's great Shaunda!
Hugh McCracken
01:23:04
Is there a transplant or CareDx group on Facebook?
CareDx - Alexandra Flaxman
01:23:37
Yes! You can follow CareDx on Facebook
Sam Dey - Heart transplanted, 2015 .
01:23:42
wow! @Shaunda. May God bless your donorhero brother & all Donors & donor families. take care.
Hugh McCracken
01:23:56
Thanks.
CareDx - Alexandra Flaxman
01:23:57
https://www.facebook.com/CareDx/
Merle Zuel
01:24:04
It is refreshing to hear your message Valen. It is easy to lose sight of our life “before transplant” after we have been out a while. Gratitude is always important.
Victor Blanco
01:24:28
You are so right, Valen!
CareDx - Alexandra Flaxman
01:24:30
Thank you Valen for helping us keep things in perspective.
Ebert Mahon
01:24:45
Having a sense of gratitude for every day is great to have.
Sam Dey - Heart transplanted, 2015 .
01:25:19
ATTITUDE IS EVERYTHING!! 👍✊ STAY POSITIVE!
Brianna Tammaro
01:26:18
Love that, Brandon - embrace the journey!
Lorrinda Gray-Davis
01:26:23
One helpful thing is to stay in the NOW. Fear- worrying about the future doesn't help us mentally or physically.
Sam Dey - Heart transplanted, 2015 .
01:26:35
@Shaunda: please contact me, I'd love to know more about your amazing story.
Sam Dey - Heart transplanted, 2015 .
01:26:48
@Shaunda: samedey@gmail.com
William Laun
01:26:59
my faith
Victor Blanco
01:28:00
Sound Bath has helped me so much to stay grounded and focused. So many pages on YouTube. I truly recommended.
Shaunda Morgan
01:28:01
Sam, I agree. I look at life so different. I want to help the community to payback. I will contact you. Mine is slm_an_b@yahoo.com
Ebert Mahon
01:28:13
I track my meds daily but going electronic
Sam Dey - Heart transplanted, 2015 .
01:28:32
support groups on Social media can be good, but be careful about listening to 'Medical advice. it's best to always reach out to your transplant team for ALL medical questions/advice.
CareDx - Alexandra Flaxman
01:29:13
Love seeing the sense of community in the chat. Such a great way to come together while we are all apart.
Ebert Mahon
01:29:22
Daily planning is key for my good health.
William Laun
01:30:19
medisafe app
Sam Dey - Heart transplanted, 2015 .
01:30:22
peeps: BE COMPLIANT!! (and use any/all tools at your disposal). WE know ourselves the best!
Sam Dey - Heart transplanted, 2015 .
01:31:52
I regularly track my fluid intsje/output through the ALLOCARE app. I wish I had the app just after my Transplant- it would've helped!
Frank Pulis
01:32:37
After 20 years of heart failure I urge everyone to be very vigilant about taking your meds on time. Especially post transplant 14 months ago
Sam Dey - Heart transplanted, 2015 .
01:32:47
happy (belated) 25th birthday, @Koren. 😉
Lorrinda Gray-Davis
01:33:07
The APP is amazing!!
Sam Dey - Heart transplanted, 2015 .
01:33:21
congrats @Frank! where did you receive your gift?
Sam Dey - Heart transplanted, 2015 .
01:35:00
to all: if anyone has questions related to heart Transplants and or about the allocare app - please feel free to reach out to me: samedey@gmail.com
CareDx - Alexandra Flaxman
01:35:40
Thank you everyone for joining and being so active in the transplant community!
Jerry and Chiat
01:36:24
Join Trio and NKF
Sam Dey - Heart transplanted, 2015 .
01:36:30
if you want to pay it forward, cone visit: https://www.trioweb.org/about/trio-board/item/samdey.html
Jim Gleason
01:36:45
For support and engagement, go to HTTPS://TRIOweeb.org for TRIO (Transplant Recipients International Organization)
Jim Gleason
01:38:07
check out Valen's book: My Favorite American
Sam Dey - Heart transplanted, 2015 .
01:38:08
contact your local OPO (Organ Procurement Organizations) - become a #Donatelife Ambassador & volunteer!!
Hugh McCracken
01:38:59
Are you doing a separate seminar like this about nutrition?
Lorrinda Gray-Davis
01:40:37
Thank you so much!!!
Sam Dey - Heart transplanted, 2015 .
01:40:40
thank you CareDx!
Victor Blanco
01:40:43
Thanks so much CareDX!!
Hugh McCracken
01:40:52
Thanks for today. Great.
Kim Burdakin
01:40:53
Thank You
Kristen Patton
01:41:03
Thank you CareDX!
Shay Rogillio
01:41:04
This was great!! Thanks!
Daniel Trecroci
01:41:18
That was really great! Thanks to everyone
Hugh McCracken
01:41:36
Is it CareDX.com?