Dance along!

Welcome everyone! Thank you all for joining!

I have vol no video

Looking forward to the information today

Looking forward to hearing from you all!!

Welcome Everyone!

Hopeful

Pretty OK

Excercised

excited!

very exciting and hopeful for a new year

glad to be here. hopeful.

Feeling good.

glad to have another webinar

Happy New Year everybody! … New year...new hopes

Thanks for making this possible. I’m hopeful and thankful.

Hello Everyone! I'm feeling great!

Good Afternoon, 2nd Covid-19 Vaccine in the books, grateful to be part of today's conversations. so much love!!

Interested in hearing what you have to say. Thanks for offering this today.

My anniversary of healthy kidney is January 25

Congrats Victor! That's so exciting!

Happy Sun is shining ☀️

I'm doing great can't wait to learn a few things.

Happy early anniversary Carolyn!

For more info about RemoTraC: http://caredx.com/remotrac

Happy anniversary Carolyn

That's great, Sam!

Happy Anniversary Carolyn! I hope you're doing great. I'm over years out.

over 34 yrs out

Hi friends! I’m so excited for this webinar and so glad you’re all here!! :)

Congrats on 34 years Shaunda!

You likely got several of us here, Valen! Thanks!

shaundra - you’ve had a transplant for 34 years?

Thank you!

That's amazing Shaunda!

John, yes

7 years post-transplant.

That's wonderful Victor!

Please feel free to share any questions you have in the chat. We will have a Q&A session with Dr. Agrawal, Valen and Brandon at the end

Just walk/ran 5 miles. Nearly 2 years post transplant.

Wow! Good for you, Hugh.

Tacrolimus gives me tremors, and makes me feel weak

Shaundra - congrats! that’s really great - gives me hope

So glad the AlloCare app is helping you Sam. The app is available to all, free, in the Apple App Store “AlloCare”

Please enter any questions you have for our panel

when will allocate app be for android?

Can one print out the data from the Allocare application, and does it replace the journal I fill in every day?

I am liver transplant recipient and just starting my kidney journey I am in stage 3B.

Thank you so much Valen for joining us and sharing your story

Thank you, Valen.

Thank you, Valen!

Yay, Bob! :)

If you have questions for our panelists, please feel free to type in here or in the Q&A

We have a Q&A session at the end

Thanks to CareDx for creating this group. It is a missing link.

Thank you, Brandon! So happy to have you and Bob here with us

What an amazing story, Brandon! So happy for you and Bob :)

Thank you Brandon. Go Bob!

amazing journey, Brandon!

is the vaccine safe for us?

Valen and Brandon … Can you share how your mental health (stress/anxiety levels) has been affected by COVID...and what you do to manage it?

John's Hopkins Hospital is seeking transplant aptients to track after the vaccine

Is CareDX doing transplant tracking or a study they are facilitating for a Nephrologist.

Yes, Gratitude writing so helpful in many ways!

That's awesome, Amy

💯 agree, @Valen! every minute out of the hospital is a blessing. I was in the hospital for 7 months...but I came out with life!

HWG- Health & Wellness Goals

goal: to track my results from tests & labs & monitor closely & take corrective action. celebrate milestones! do more advocacy & pay it forward to the organ transplantation & donation communities.

COVID-19 is scary & a pain in the ___ ! however, it's within our control to look after ourselves & protect the gifts of life we've been blessed with. #maskup & #staysafe

wow @Brandon! your mom is a true #donorhero🙏

you're blessed, @Valen 🙏 Congrats on your Transplants

hi @Lorrinda!

Indeed, @Allocare. we're still waiting for the Android version. 🍎 gets too much importance😉

Hi Sam!!

AlloCare is a very useful app! I've been using it. we Transplant recipients know how important the word "Compliance" is to us.

Excited that Android for AlloCare is coming in the Spring 2021

Milton, that is an incredible journey. Congrats!

Mental Heath Matters. The stress of the pandemic can trigger or aggravate underlying mental health issues.

in April, it'll be 6 years post heart TX for me. #blessed & #forevergrateful to my ♻️ #donorhero for the #giftoflife ✅🙏

Great point, Merle. Nice to see you on here.

congrats @Victor

I move at least 10 minutes every day...

Pickleball is great too, and can be less stressfull if you are older.

Love your enthusiasm and participating in all our webinars, Sam.

I've been using RemoTrac since April 2020!! great service - don't have to leave home for lab draws!

I get up at 4:45 every morning and exercise to videos on YouTube. Also walk every night outside as well.

@Merle I agree

good rule to follow, @Lorrinda👍

@Sam Dey, always a pleasure to have you and other TRIO members and leaders on the webinars

Great Diane!

pleasure is mine @Rana/CareDx

Same to you Sam

@Hugh Love pickleball

virtual workouts with my local heart transplant workout group. great for physical and mental health during covid!

keep an eye on blood sugar, especially after holidays and lockdown

Less than 7 months after my kidney transplant (which was June of 2019), first 1 then the other hip went VERY "south" and have had them both replaced. Tons of PT and OT. Almost able to walk on my own. Exercise is just getting around with walkers and dragging myself up my staircase!!

yay pilates!

Wow, Mark! I know you've been working hard! Keep up the good work! You'll get there!

best of luck to you @Mark...keep at it

great @Kristen!

This May will be five years out with heart and kidney transplant. Forever grateful! Thanks and always praying for donor and donor's family. Truly a gift of love!

Keep up the great work, Mark. One day at a time. :)

one of my issues is High Blood pressure. I try to meditate every morning to start my day.

Thanks- I am doing the best that I can. Between my daughter's kidney and 2 titanium/plastic hip joints, I feel bionic!!

thank you, great information and will use ALLOCARE

congrats @Shaunda👍 Inspirational

@Roland Happy to hear that!

Thanks Sam

I’m attending exerclasses on Zoom. Love connecting with people outside my home

I once invited my husband to join me for a barre class- he thought it was a “bar class” where you lift heavy bar weights and was very surprised to see a ballet barre when we showed up (this was back when we could go to live classes!)

Kidney? @Shaunda?

@Valen and @Brandon so inspirational. WE need to see people like you as it helps us all!

happy new year to all! May 2021 be MUCH better for all of us. ✊🙏

Sam, yes. My brother donated and I never was on dialysis

That's great Shaunda!

Is there a transplant or CareDx group on Facebook?

Yes! You can follow CareDx on Facebook

wow! @Shaunda. May God bless your donorhero brother & all Donors & donor families. take care.

Thanks.

https://www.facebook.com/CareDx/

It is refreshing to hear your message Valen. It is easy to lose sight of our life “before transplant” after we have been out a while. Gratitude is always important.

You are so right, Valen!

Thank you Valen for helping us keep things in perspective.

Having a sense of gratitude for every day is great to have.

ATTITUDE IS EVERYTHING!! 👍✊ STAY POSITIVE!

Love that, Brandon - embrace the journey!

One helpful thing is to stay in the NOW. Fear- worrying about the future doesn't help us mentally or physically.

@Shaunda: please contact me, I'd love to know more about your amazing story.

@Shaunda: samedey@gmail.com

my faith

Sound Bath has helped me so much to stay grounded and focused. So many pages on YouTube. I truly recommended.

Sam, I agree. I look at life so different. I want to help the community to payback. I will contact you. Mine is slm_an_b@yahoo.com

I track my meds daily but going electronic

support groups on Social media can be good, but be careful about listening to 'Medical advice. it's best to always reach out to your transplant team for ALL medical questions/advice.

Love seeing the sense of community in the chat. Such a great way to come together while we are all apart.

Daily planning is key for my good health.

medisafe app

peeps: BE COMPLIANT!! (and use any/all tools at your disposal). WE know ourselves the best!

I regularly track my fluid intsje/output through the ALLOCARE app. I wish I had the app just after my Transplant- it would've helped!

After 20 years of heart failure I urge everyone to be very vigilant about taking your meds on time. Especially post transplant 14 months ago

happy (belated) 25th birthday, @Koren. 😉

The APP is amazing!!

congrats @Frank! where did you receive your gift?

to all: if anyone has questions related to heart Transplants and or about the allocare app - please feel free to reach out to me: samedey@gmail.com

Thank you everyone for joining and being so active in the transplant community!

Join Trio and NKF

if you want to pay it forward, cone visit: https://www.trioweb.org/about/trio-board/item/samdey.html

For support and engagement, go to HTTPS://TRIOweeb.org for TRIO (Transplant Recipients International Organization)

check out Valen's book: My Favorite American

contact your local OPO (Organ Procurement Organizations) - become a #Donatelife Ambassador & volunteer!!

Are you doing a separate seminar like this about nutrition?

Thank you so much!!!

thank you CareDx!

Thanks so much CareDX!!

Thanks for today. Great.

Thank You

Thank you CareDX!

This was great!! Thanks!

That was really great! Thanks to everyone

Is it CareDX.com?