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Managing Anxiety as a Transplant Patient in a COVID-19 World - Shared screen with speaker view
Peter Maag
01:03:45
Hello!
Peter Maag
01:04:14
I am excited to be on with "friends and family"!
Della Major
01:04:23
Hello Peter
Peter Maag
01:04:51
Hi Della! Fantastic to have you back!
CareDx
01:05:02
Hello Everyone, make sure when you use the chat to select To: “All panelist and attendees” so everyone can see your chat. You’ll find it in the blue bar above the chat field.
Shelley Hall
01:05:52
frazzled
Della Major
01:05:53
Excited
Merle Zuel
01:05:58
Grateful
Richard Pennington
01:06:01
good
Talia Giordano
01:06:03
happy!
Ryan Hunt
01:06:08
Content
Joel Lukow
01:06:20
looking forward to this webinar
Elizabeth Gagliardi
01:06:40
glad to listen
Jim Gleason
01:07:05
with thanks for these sharings
Merle Zuel
01:07:39
Hello JIm Gleason.
Merle Zuel
01:08:14
Hello Frances
CareDx
01:09:44
Sign up for RemoTraC: At Home Blood Draws at https://www.caredx.com/remotrac/ and we will contact your transplant centers to work with them on your next blood draw.
Elizabeth Gagliardi
01:10:18
remo trac was great
Sam (Heart recipient, 2015) Dey
01:10:51
I've benefitted from RemoTrac - excellent service! The results of the blood drawcwere available the same day!!
Robin
01:12:54
Is RemoTrac covered by insurance?
Sam (Heart recipient, 2015) Dey
01:13:43
I believe so..(I have CIGNA)
Amanda Wilson
01:13:52
yes.
Robin
01:14:14
Thanks
Sasha King
01:14:46
Hi Robin- AlloSure is fully covered by Medicare, and CareDx is covering the cost of the home phlebotomy and ensure you will not pay more than what you normally do out of pocket
Sasha King
01:15:18
RemoTraC is our dedication to help the transplant community right now when home blood draw solutions are needed
Robin
01:15:31
I am not eligible for Medicare yet but I do have Horizon BCBS.
Sasha King
01:16:05
Alan- we have over 10,000 mobile phlebotomists covering the US including many rural areas, sign up on caredx.com/remotrac and we can follow up if there is a solution in your area
Sasha King
01:16:53
Robin- For AlloSure, we will work with your individual insurance provider directly and ensure you will not see any undue hardship for this testing of your transplant health
Sasha King
01:17:06
Thanks all for the questions!
Robin
01:17:36
Sasha-Thank you for the info
Robert Weiss
01:17:38
Can we get a little more information on Remotrak please?
CareDx
01:18:05
Hello, Sign up for RemoTraC: At Home Blood Draws at https://www.caredx.com/remotrac/ and we will contact your transplant centers to work with them on your next blood draw.
Merle Zuel
01:18:48
Basically, a phlebotomist comes to you and does your blood draws at home.
Robert Weiss
01:18:54
re: Remotrac - I already have a phlebotomist coming out to me
Elizabeth Gagliardi
01:23:15
I miss my grandchildren terribly
Robert Weiss
01:23:51
I second that Liz. We just had our first grandson who we haven’t seen in 3 months!
Marie Ventimiglia
01:23:57
Me too, Elizabeth. The saddest thing for me!!!
Alan MacPhee
01:25:12
it’s sweet, but heartbreaking, to see my grandson through a window.
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:25:28
miss my daughter, it's been 6 months since I saw her - Father's Day coming up too
Merle Zuel
01:25:29
my 2 yo granddaughter would video call us. It really brightened up our day
Marie Ventimiglia
01:26:15
Anxious about planned outdoor barbecue for Father's Day...10 persons total...3 three yr olds...one 18 month old
Robert Weiss
01:26:54
Everyone seems to have their own definition of “social distancing”
CareDx ( Rana Mukaled)
01:27:11
If you have questions for our Panelists, please feel free to type your questions in the Q&A tab at the bottom of your screen
Merle Zuel
01:27:30
WE have a very small circle of friends that we have limited contact with and have use now started to see our family members in person. Social distancing conscious, but life goes on.
Elizabeth Gagliardi
01:28:32
I to am cooking a lot
Amanda Wilson
01:28:55
what creates anxiety for me is when will I will feel safe. I can protect myself but can’t protect myself against other.
Diane Brockington
01:29:08
I believe you've reached out to them--Balboa Nephrology Medical Group in San Diego. thanks.
Amanda Wilson
01:29:31
I have a friend who comes to my house and we do socially distance meet up outside in my yard.
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:29:51
Shawn, please be extra careful since you're only 7 months out...
Amanda Wilson
01:31:05
I’ve been trying out meditation. use Calm app.
Marie Ventimiglia
01:31:07
quick outdoor visits, socially distant, drive by with grandkids
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:31:24
watching less hours of COVID coverage helps with anxiety
Amanda Wilson
01:31:31
been cooking a lot particularly Indian food.
Amanda Wilson
01:33:58
what is concerning is that medical clinics are starting to back off from telehealth.
Kelly McQuaid
01:35:31
last week was 31yrs since my heart and lung transplant. I don't really leave the house much right now. But I do sometimes go for a drive just to get out for a while.
Elizabeth Gagliardi
01:35:46
transplant clinic in New York City very nervous to go there
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:36:14
CONGRATS Kelly!! #Donatelife
Amanda Wilson
01:36:44
Kelly, that is amazing.
CALVIN HENRY
01:36:47
very nice. congratulations on that Kelly!
Marie Ventimiglia
01:37:20
Can our physicians tell us how transplant patients who do contract COVID 19 fare as compared to general population?
Kelly McQuaid
01:37:29
I am well. Thanks.
Isabel Stenzel Byrnes
01:37:51
My transplant doc said two lung recipients have caught COVID but survived.
Merle Zuel
01:38:14
your mental health is just as important as your physical health
Elizabeth Gagliardi
01:38:14
not enough information about how transplant patient fair with covid
Michelle Smith
01:38:22
I’ve been exercising outside with a mask on. Is the mask necessary?
Alan MacPhee
01:38:24
Online classes + outdoor walks work well for me.
Diane Brockington
01:39:31
Yes, a kidney transplant recipient, mid 50's, overweight, touch and go but made it after 11 days in ICU.
Isabel Stenzel Byrnes
01:40:27
The Transplant Games were cancelled and it is a great source of motivation, joy, connection, friendship and an affirmation of life. I always need something to look forward to… so I have to come up with new things to look forward to… camping trip plans this summer, for example.
Amanda Wilson
01:40:50
what is a caregiver. I have a husband but he’s certainly not viewed as a caregiver.
Alan MacPhee
01:41:12
I do not wear a mask on my walks, but I live in a smallish town in which it’s easy to keep lots of distance.
Ryan Hunt
01:41:15
Yeah, I don't have a "caregiver" either
CareDx
01:41:42
Great question about air travel Terrence, we are hosting a webinar on travel on June 29th, sign up here: https://caredx.zoom.us/webinar/register/9415923534016/WN_EkLjPSMSRHO6mOaOXtvhzg
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:41:47
should questions be asked in this chat window or in the "Q&A" area
Mary Wu
01:41:55
I don’t even think I have a caregiver, Amanda
Michelle Smith
01:42:03
I ride a bike and typically pass several people while out. That’s why I wear a mask.
Mary Wu
01:42:03
yeah same here Ryan
Mary Wu
01:42:17
I miss socializing and being with my friends and family. I live all alone without human contact so it’s been challenging . luckily I have my cat Ricky , but not the same. I’m a very social in person people person so it’s her hard.
Mary Wu
01:42:54
*it’s been hard, not “her hard “ :-P
Mary Wu
01:43:24
I color and cook a lot... really into baking cookies !
Mary Wu
01:44:27
does anyone here live alone ?
Robert Weiss
01:44:31
We order food online too. A little more expensive but worth it.
Ryan Hunt
01:44:39
I live with my wife and baby <3
Alan MacPhee
01:45:35
Great point about spouses/partners curtailing their own activity to protect us. my wife is an avid extrovert, but has been heroic about staying home.
Amanda Wilson
01:45:38
we have been ordering online grocery shopping but my husband has been laid off and I am starting to realize the high mark-up on cost
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:45:51
lots of cooking going on in my household...in weekends we have a 'cook-off' competition - make/eat/judge..:-)
Ryan Hunt
01:45:54
I think the tension in the house is less from being together all the time and more that it's just one more thing to worry about. There's already so much it feels like.
Isabel Stenzel Byrnes
01:46:16
My neighbor and family have also been buying groceries for me as well… sometimes we can ask people, including neighbors on “NextDoor” to help us out.
Alan MacPhee
01:47:26
Online ordering: I’ve discovered “ugly food” delivery cheaper than the supermarket.
CareDx
01:47:36
Join Merle and CareDx at MerleJam! Learn more at https://merlejam.com/
Amanda Wilson
01:48:06
Alan, what is “ugly food”
Isabel Stenzel Byrnes
01:48:24
Can’t hear Shawn
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:48:26
inaudible
Robert Weiss
01:48:31
For me, artichokes are ugly food
Stephanie Chabalko
01:49:49
as things open, we plan to stay home.
Robin
01:49:56
I am perfectly content with watching events and celebrations on tv from my living room. Knowing I am away from all of those out there walking around without a mask, I am A-Okay.
Elizabeth Gagliardi
01:49:56
as things open and my grandchildren and family are going out more I feel like I can’t see them for an even longer time missing them so much
Alan MacPhee
01:50:35
Stephanie, 👍🏼
Amanda Wilson
01:51:05
I will continue to stay home. too many people out there not doing their part, people walking in to a lab clinic without wearing a mask being a very good example.
Michelle Smith
01:51:37
Agreed, Amanda. I’ll stay home, too.
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:51:44
it's not just personal anxiety, I worry for my older parents and my children (& their mental state) - the 'overall' impact is intense!
Mary Wu
01:52:03
yes I agree
Merle Zuel
01:52:22
good point Isabel
Marie Ventimiglia
01:52:35
Isabel - Your outlook is inspiring!
Isabel Stenzel Byrnes
01:52:41
Deb Purks, RV travel sounds perfect!!
CareDx ( Rana Mukaled)
01:52:47
Feel free to type any questions for our panelists in the Q&A
Michelle Smith
01:52:49
Great point, Isa.
Amanda Wilson
01:52:53
it feels as if we’re keeping ourselves safe, we are also helping society by keeping ourselves healthy and not occupying a hospital bed.
Elizabeth Gagliardi
01:52:56
as things open I am more worried about my family getting sick
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:53:18
the 'new normal is yet to arrive. we are in a transitional phase
Robert Weiss
01:53:19
Friends checked out several RV parks in Florida — all were full. They just returned home
Isabel Stenzel Byrnes
01:53:52
I’ve been doing Zoom karaoke with my friends from across the country and it is sooooo much fun to engage in a fun and outgoing way!
Mary Wu
01:53:56
drive in movies are good too !
Stephanie Chabalko
01:54:07
yes !! great question
Marie Ventimiglia
01:54:35
Panelists - Have you sought out counselling, therapy, anxiety drugs?
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:54:37
it's reality!
Elizabeth Gagliardi
01:54:51
it’s hard for my family to understand my anxieties
Merle Zuel
01:54:53
We have a monthly transpalnt support group through TRIO KC and we get together via zoom. It’s been really helpful
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:55:14
options for more 'tele-therapy' sessions??
Isabel Stenzel Byrnes
01:55:21
I love TRIO, Merle and Jim!
Mary Wu
01:55:24
Elizabeth, i feel the same
Robin
01:55:53
I make sure to remind my adult children to continue to wear a mask, and social distance. If they come by to visit once a week, they wear a mask in my home during the time they are here, and I take their temperature as they walk in the door. They don't mind, since they know the importance of not getting mom sick.
Elizabeth Gagliardi
01:56:01
it never bothered me to wear a mask
Marie Ventimiglia
01:56:10
It's so hard to trust little ones to stay away...they are too quick
Michelle Smith
01:56:11
Thank you!
Elizabeth Gagliardi
01:59:06
tele health visits and in home labs should continue
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:59:21
does the ALLOMAP test completely 'replace' heart catherizations? will it potentially used more, in the post COVID World.
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
01:59:53
we can't make anyone (outside of peiple we know) wear a mask
Elizabeth Gagliardi
02:01:04
at the beaches no one is wearing a mask
Marie Ventimiglia
02:01:07
Is there a "best" mask to wear?
Diane Brockington
02:01:19
Mind the Gap!
Alan MacPhee
02:01:28
meme: if you don’t like masks, you’ll hate a ventilator
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
02:02:37
pretty soon we will all know someone who succumbs to mental health challenges
CareDx
02:02:48
Do you have concerns about air travel? CareDx is hosting an upcoming webinar on air travel for transplant patients. Guests include heart transplant recipient and Executive Chairmen of United Airlines, Oscar Munoz and National Kidney Foundation CEO, Kevin Longino on June 29th, sign up here: https://caredx.zoom.us/webinar/register/9415923534016/WN_EkLjPSMSRHO6mOaOXtvhzg
Elizabeth Gagliardi
02:02:54
we pray more which is very beneficial
Marie Ventimiglia
02:04:10
Thank you all! You were great! I enjoyed my time with you :)
Michelle Smith
02:04:20
Thank you
Isabel Stenzel Byrnes
02:04:21
Thank you everyone!
Mary Wu
02:04:24
thank you!
Sam(Sj)-❤Heart Recipient♻️, 2015 Dey
02:04:25
thank you all
Merle Zuel
02:04:26
thank you
Richard Pennington
02:04:27
thank you
CareDx ( Rana Mukaled)
02:04:28
Thank you everyone!
CareDx
02:04:55
Air Travel Webinar sign up is here: https://caredx.zoom.us/webinar/register/9415923534016/WN_EkLjPSMSRHO6mOaOXtvhzg